24 October 2014

Disney Blog Hop for Rett Syndrome Awareness


Happy Saturday
and 
Welcome to this year's Blog Hop for...
Rett Syndrome Awareness
 
In this hop we will be showing you many Disney themed projects while sharing with you about
Rett Syndrome.
If you have just stopped by my blog to visit with me, thank you and welcome, but please start at the beginning of the hop with our
Hostess, Robin from
Create-A-Latte.
We would not want you to miss any of these wonderful projects.

So, grab yourself a Latte', sit back and hop along with us as we share our projects with you.
 October is Rett Syndrome Awareness Month, so I wanted to help get the word out and what better way to do that than with a blog hop.
  
Rett Syndrome strikes without warning. A girl with Rett Syndrome usually starts out as a happy and healthy baby. Then something goes terribly wrong. She loses the ability to speak, she can't use her hands to play with toys, or to even feed herself, and she may lose the ability to walk. 
Despite their physical disabilities, girls with Rett Syndrome are believed to be functioning mentally at a much higher level than previously thought.   
Rett Syndrome is caused by a mutation of the MECP2  gene on the X chromosome.  
Rett Syndrome is found in all racial and ethnic groups throughout the world, and in every socioeconomic class.  
Rett  Syndrome affects in 15,000 female births.  

*Symptoms of Rett Syndrome...

Rett Syndrome is a genetic neurological disorder that affects girls between 6 and 18 months of age. This regressive disease leads to lifelong handicaps, including loss of speech and voluntary muscle control, and is often misdiagnosed as Cerebral Palsy or Autism. Symptoms range from mild to severe, and almost always include...
*Developmental Regression or Plateau
*Near constant hand clasping or wringing
*Severe communication impairment
*Breathing problems
*Digestive issues
*Floppy arms and legs
*If able to walk, then with a shaky, unsteady gait, or toe-walking. But most do end up using a wheelchair for the most part.
*Scoliosis
*Seizures
*Slowing head growth
*Abnormal sleep patterns
*Transient loss of social engagement
*Poor circulation that can lead to cold and bluish arms and legs
*Anxiety
  
Many individuals with Rett Syndrome live well into adulthood, although there are some that do not get that chance and end up losing their battle to Rett Syndrome at a very early age.
Most people including Doctors are not aware of Rett Syndrome, so, please help me get the word out about Rett Syndrome and hopefully the more that know the faster we can help in finding a cure.

For more information you can visit...
http://www.rettsyndrome.org/

Now, are you ready for some blog candy???  We have a several wonderful and generous sponsors today...


1.  Lucy Kelleher
with Close to My Heart
$10 gift certificate for Close to My Heart products with Lucy 

Close To My Heart


2.  Dee's Delights Store
$20 Gift Certificate for Dee's Store



3. Heather Stafford with...
Gemini Red Creations
A floating locket and your choice of two floating charms 


 

http://www.geminiredcreations.com/shop/floating-lockets/
 

4.  Diana Larson with
DLART
$10 Gift Certificate for DLART Store

https://www.etsy.com/shop/DLART

5.  Robin Lane with
Create-A-Latte
A Collection of Snap Products by Simple Stories. Everything you need to put together your Disney memories.
The kit comes with an Album, a pack of Insta Pocket Pages, "Say Cheese" Journal Kit, and the "Say Cheese" Snap Pack.

  

Without further ado...Our Disney Projects.





Since this is a Disney-themed hop, I thought I'd go through some old pics and share my first visit to Disney with you!  I added Black Diamond and Star Dust Stickles to the Mickey icons across the bottom to add a little extra bling.

Be sure to head on over to....

Jessica

for your next stop and see her wonderful project that she has made to share with you today.

If you get lost along the way here is the entire line up for today's Blog Hop.

1.  Robin L. ~  http://create-a-latte.blogspot.com/


Thank you for hopping along with us today, I hope that you have learned something about Rett Syndrome and that you will help spread the word so that we can make as many people aware of this as possible. I also hope that we have inspired you to get your craft on.



Thanks for stopping by!


11 comments:

Eva Laney said...

This is a great Disney layout with wonderful papers you used. Great hopping with you - Eva Scraps

Golden Goddess Designs said...

great layout! thanks for sharing!

Scrappin Robin said...

What a wonderful layout, and I love the added bling with the stickles. Thank you for sharing and for being a part of my special hop.
Robin
http://create-a-latte.blogspot.com/

Lori Apgar said...

What a great layout!! I love the handwriting in the Mickey Head!!

Brenda "Disney Girl" said...

Wonderful layout & such a fun hop!
Disney Girl

Annemarie's Art From the Heart said...

I just love that Mikey head where you journaled on that fun layout! All those great Disney strips too--wow

Sarah J. B said...

What a cute layout! I love it!!

Miranda said...

Great LO!
Miranda :)

Rhonda Helm said...

how fun is this? i love it .

Connie Wallenbrock said...

Great layout. Love the journaling in the Mickey head. Happy to hop with you again. Scrappy hugs connie

maureen said...

Thank you Ashley for joining in with the blog Hop for Rett Syndrome Awareness.Hugs xxxx Maureen xxxx